Resources and support to facilitate trustworthy sharing, access and use of health data

On this page you will find links to resources and examples which will help you with a range of data related topics such as data capture standards, data storage, management and preparation, governance and standards, and trustworthy and ethical data sharing.

Resources

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Resource About Type Theme Organisation
AWS - cloud training materials Training Pathways for Public Health identifies the cloud concepts and AWS services needed by three public health personas, and compiles existing AWS training modules into defined pathways for each. These pathways are presented as AWS Ramp-Up Guides across three personas: Applied epidemiologists, Public health informaticians, Bioinformaticians Training Data and Governance Amazon Web Services
EDCTP Data Management Portal The EDCTP Data Management Portal has been developed to provide support to researchers to ensure that high-quality data management is fully considered, and planned for, from the outset and throughout the life of a research project. e-Learning Course Data and Governance EDCTP
Generic data controllership agreements for re-use These agreements were created as part of the ICODA programme. They are open, free to use and amend as needed in support of establishing your organisation as a data controller, we just request you attribute us following our Attribution Policy. You can find background to this capability and the agreements used as part of the ICODA programme and generic versions provided for re-use on our data controllership page. Document Data and Governance International COVID-19 Data Alliance
Generic Governance Policies for re-use The International COVID-19 Data Alliance (ICODA) has made available generic, re-usable governance policies for research reviews, output reviews, publications, attibution and acknowledgements. These can be used as reference templates for your our research projects Guide Data and Governance International COVID-19 Data Alliance (ICODA)
Training course: Data Sharing This course aims to fill this gap by giving you basic and practical guidance in data management and sharing. This course is aimed at early career researchers, postgraduate students and clinical research support staff who are collecting, managing and using health data. It includes modules such as Ethics and best practices in sharing individual-level research data, Data governance, policies and Data Access Committees, Data quality, and Costing for data management. e-Learning Course Data and Governance The Global Health Network
Training course: Introduction to Data Management for Clinical Research Studies Good data management is key to maintaining, processing. analysing and storing high quality data. This course provides an overview and guide to this important element of the research process and is aimed at everyone involved in clinical research. e-Learning Course Data and Governance The Global Health Network
Data Management E-Learning Modules In the training module, the focus is on the activities related to data management and information communication technologies (ICT), in particular on the design of a data management plan and its reference to relevant data management and ICT procedures led by ALERRT WP 3 collaborators. It provides an overview of setup and data management in low- and middle-income countries where ALERRT study sites are distributed. e-Learning Course Data and Governance ALERRT (African Coalition For Epidemic Research, Response And Training)